Monday, April 9, 2012

Mom ~ The Continuing Story

This post is going to be different than the last one about my Mom. It being such a long time since it happened, I have a hard time putting everything in chronological order, so this post will be pretty random.

Those of us that took care of Mom, began to notice a cycle to how she responded. At first it seemed that she perked up and was really responsive when my Aunt Jolaine was around. But soon, even she experienced the days when she too couldn't get Mom to respond. I label this period as "being in the clouds". Mom would look at us and for a second she recognized us and then it would be gone and she was in a world of her own. During this "cloud" period, getting her to drink or eat was quite challenging because she wouldn't focus for more than a few seconds at a time. Many times we had to repeatedly say her name to get her to focus. She wouldn't say much, if anything, when she was like this. This would go for a few days and then one morning she would wake up and be herself again, as if the past few days hadn't happened. We couldn't predict when the ups and downs would happen, but we did recognize the cycle. We also noticed that the cycle started lasting for longer periods. This brought some pretty low moments for many of us working with her. And then one morning, she'd be "awake" and wonder what we were so excited about. Because of this I experienced a few surprises. For instance, the picture below:
October 15, 2011
October 15, 2011
It was taken one early Saturday morning when I got up to go to the temple. Mom had been having a few rough days of being unresponsive. I went to the temple and came back to see how things were going. My aunt had taken the morning shift and gotten Mom breakfast. When I got to the house, no one was with Mom, so I went in to see her. As I stood next to her, she looked at me and smiled. I said, "It was a beautiful morning at the temple Mom." To which she responded, "I bet it was!" There she was. That was Mom. :) It may not seem like much, but that was a lot for her to say. In fact, if I remember correctly, it was the first thing she had said that day. Even my aunt was surprised when I told her.

Another early morning I changed her and asked if she was thirsty. I don't remember what response she gave, but I was getting her cup and straw and trying to get her to suck. Having had many experiences where I had to repeat her name to get her to do it, I started saying, "Mom... Mom... Suck on the straw. Mom..." At one point, I must have gotten impatient with her, thinking she was in the clouds again, when she said, "Just a minute, Sis!" Yep, she was still there. :) Mom always called her daughters, "Sis" or "Sissy." I remember when I was younger, I asked her why she referred to us as "Sis"... meaning sister, when she wasn't my sister... She responded that actually she was. For a child, I think that was the first time I understood the spiritual relationship we have with each other.

During all this, I had so much support from friends and co-workers. Not long after Mom had been diagnosed, I received a phone call from the marketing director at work, who informed me that the company wanted to do something for my family. She had experience with people dealing with cancer and asked if we would like having rubber bracelets made for her. At first I didn't understand and thought that bracelets weren't going to fix anything. She went on to say how she had done this with other families and what a difference a simple bracelet would make. She mentioned that they came in different sizes, even one for children. As soon as she mentioned children, I got it. (I'm slow...ok?) I thought of all my nieces and nephews and how much they would love to wear one. Duh! :) So I talked with my family and decided on having the following printed on the various blue bracelets: "Denna Stradling Marble" and " 'I will GO and DO' 1N 3:7" One of Mom's favorite scriptures. (Sidenote #1: You can't really write a lot on those things!) (Sidenote #2: Since reading parts of Mom's journals, I have read a few entries where she wrote that verse as being one of her favorites.) :)


One morning, as I was driving through Provo on my way to work, I saw this car:

Now, it isn't everyday that you spot your mother's very unique name on someone's license plate. Definitely a cool day for me. :)

A shout out to Mom's caregivers:

Amy, my older sister had been living with Mom and Dad for a few years and had been taking care of Mom all summer when we were thinking that Mom was just dealing with lead poisoning. Amy was Mom's right hand for so much over the past few years. Amy has done so much for Mom, words alone aren't enough. Amy continued to help as this change took place with whatever she could, even though she had since moved into a place of her own.

Dad had also done a terrific job of taking care of Mom over the summer, taking her for rides when she got sick of being in the house too long. Taking her to St. George to visit her mother Labor day weekend when she really wanted to be in Texas at my nephew's wedding, but we knew a trip that long wasn't possible with her health being the way it was... He did so much for her. After she became bedridden, he couldn't do as much as his ankles weren't strong enough to steady him with moving her around. But he helped as circumstances allowed, feeding her and reading scriptures with her. Obviously this was a hard time for him.

At the time of the diagnosis, my sister Sonja, was visiting from Texas and decided to stay on for another two weeks to help us get things under control and establish some routines. I'm sure those first couple of weeks would have been even more chaotic than they already were if she wasn't there. Such a great example!


Mom's older sister, Jolaine, lived in Arizona with her family, but when Mom was diagnosed, she temporarily moved in with us. She understood the methods that Mom wanted to use to fight this battle. My Aunt Kathy, and my grandma were also very involved in helping take care of Mom, but weren't able to spend the same time with her as Jolaine. And while the miracle that we were all hoping and praying for didn't happen, I believe that what was done was what helped Mom live as comfortably as she did those last few months. From everything that the doctor's and nurses had told us about how advanced the cancer was in her brain and the rest of her body, she should have been in more pain and most certainly not been as cognizant as she was. She wasn't really in much pain most of the time and what pain she experienced seemed to come from the circumstances of being in a bed all the time and other things... not really to do with any of the cancer inside of her. Besides "being in the clouds," she still was herself to the end. THAT, to me and many others, is the miracle that we witnessed during those months. For that, I am forever grateful for what my Aunt Jolaine, my Aunt Kathy, and my grandma did for Mom during that time.

Another huge help came in the form of two of our "babies" neither of which are actual babies anymore. Rachel, Mom's youngest and therefore Mom's "baby" temporally left her husband and home in Texas to come and take care of Mom. She brought her daughter, Chloe, a very strong-willed, cute, 2-year old. It became morning routine for Chloe to come wish Grandma "good morning" sit by her, hold her hand, blow kisses at grandma and then go look for food. :) When prompted to say, "I love you" she would say, "I too" meaning "I love you too!" You can imagine the exciting world this two year old lived in with different gadgets and buttons to press... We had to keep a close eye on this one to make sure she didn't decide to move grandma's hospital bed around when we weren't looking. Although, I'm sure grandma would've laughed at it being any other person going for a ride... :) Chloe was very germ conscience. She always said, "Hands" knowing that she needed to use hand-sanitizer before holding grandma's hand. Chloe also did a good job of keeping tabs on grandpa. :) Definitely a new experience having a little one around again. Amazing to have the joy and innocence of a child in our day to day lives. A very BIG help for one so small.
October 20, 2011 with Chloe
Rachel did so much during that time. She did a lot with meals and taking care of Mom, when she wasn't trying to keep Chloe contained and happy. She had a lot of other issues she was dealing with at this time, forefront, the prospect of losing her best friend, her mom, whom she had always been very close to. It was quite inspiring to witness the growth that Rachel went through during this time. Quite an amazing person in my life and someone I look up to quite a bit.

As you can see, I have some pretty awesome sisters! Sisters are the best! :) Brothers are pretty cool too. :) So many times my brothers came over to visit Mom or would pop by and mow the lawn or do some other thing that needed doing. One sister-in-law, Kayleen, who works from home as a virtual school principal came by on several occasions to sit with Mom and work from her laptop. Also, her daughter, my niece, Taylor, came by after school several times and just talked with Mom. Jolaine had told us to just talk about everyday things with her, even if she didn't always respond, Mom loved hearing what was going on in our lives. I remember one afternoon,Taylor came by and was just chatting away at Mom. It was so cute. Just the two of them, holding hands, talking. So many family members, friends, ward members helped us with cleaning, meals, and expressing love and support. We are truly blessed.

My family really is the greatest. It's true we had some pretty challenging times. Terminal illness brings out so many things I never thought would happen. But it was amazing to see how we all also did our best to lift and strengthen each other.

Mom loved seeing her grandkids. Even when she was "in the clouds" she still smiled anytime they came around. Here she is with Meisje (pronounced my-sha). The morning after this picture was taken, Mom woke up and was confused when we were saying it was Sunday. She seemed to think it was Saturday. When I asked her about different things that had happened the day before, one of which when some of the granddaughters came over, she didn't remember it at all. It was like the day hadn't happened for her. I can't comprehend how frustrating that must have been for her to feel like she was missing so much.
October 22, 2011 with Meisje
Another time, my sister-in-law, Amy came over with her 3 kids: Jackson, Carson, and Brooklyn. Brooklyn didn't want to be in the picture. :) 
November 13, 2011 with Jackson & Carson
Right after Mom was diagnosed, Freeman and Amy were talking with their boys about how sick grandma was and how much she needed their prayers to which Jackson responded with, "We have been praying! Is it time to fast for her?" A seven-year-old, who hates to fast (what 7-year-old doesn't?) but who loves his grandma so much and understood the power of fasting enough to want to exercise his faith on her behalf. I sure love this boy!

At Mom's funeral, her grandchildren sang, "A Child's Prayer" - one of Mom's favorites. During the whole song, Carson stood there sobbing. It nearly broke everyone's hearts. That night I told Carson that he did a good job singing that morning. "Thanks. Even though I was bawling!" was his response. I asked him why he was crying and he said quite matter of fact like, "Cause I don't want Grandma to live in heaven... I want her here." She loved, and was loved by, her family a great deal.


Interestingly during this time, I had become friends with a certain young man, who at that time, I thought was a pretty great guy. (Note: That relationship has since ended. And I am perfectly okay with that. :) ) The morning after things really started developing with this guy, I sat with Mom after getting her ready for the day and just talked with her. I told her about what I thought of him. I told her the things that were happening between us, just like I always had done. She smiled the whole time and asked things about him in her limited manner. It was cool to have that moment with her, just like old times.

As it was still a busy time at work and especially since I was taking care of Mom during the night, I often did the morning routine with her and wouldn't get to work super early. I wasn't able to leave work very early and by the time I got home, she would be ready for bed and sometimes, already asleep. Mom was an "early bird" her whole life, so it didn't surprise us that the mornings were her best time and she was the most alert. I cherish those mornings that I spent alone with her. By the end of the day she was pretty tired so there wasn't much conversing. One such night, I arrived just after she had eaten dinner, had her teeth brushed and was ready to go to sleep. I went in, turned off the lights and said, "Good night Mom. I love you." Just like I did most nights. This night though, she responded with, "I love you too, Emily." In that moment it struck me that I hadn't heard her say my name in a long time. It's funny that I didn't even notice when she had stopped. It made me ponder and as I went downstairs to see Rachel, she noticed that I was quiet and asked what was the matter. When I told her that Mom had said my name, she RACED up the stairs to see if Mom would say hers. :) It's funny how we got into the mode of taking care of her that we didn't notice how much we missed our mom being a mom.

The first week after the diagnosis, when things really took a nosedive with her, there was one evening, after she was ready for bed that I sat in her room thinking over the events of the day. Everything was so hard and there were challenges that had come up that I didn't know what to do. I felt that it would be best for me to be around the house the next day so I quietly called my boss and left a message stating that I wouldn't be coming in the next day. As I stated that things were pretty stressful, my voice cracked as I started crying. Right then, I noticed my Mom, who had been asleep, looking at me very intently. I quickly ended the message and went to her bedside and asked what was the matter. She just looked at me with a concerned expression on her face. I asked her what she was concerned about, thinking she might be in pain. She just said one word, "You!" Even during an extremely hard time, she still was more concerned about others than herself.  I quickly reassured her that I would be fine. I know from conversations that I had with Rachel, that Mom often expressed her concern for various family members. Even a woman as limited in her ability to communicate was still able to express a deep sense of love to us, her children and family. Quite an amazing woman.

I have one more in mind to write, so... it isn't over yet. :)



4 comments:

ChrissyLee said...

i love that your writing all of this down. those are special memories that you'll always cherish. love you em.

Cindy Thomas Munksgard said...

Another tear jerker. Wow. Thank you so much for sharing these sweet details. You are such a strong person - in so many ways - wish I could be just like you!

Julie said...

Wow. This story is incredible Emily. I am amazed at the true nature of people that come out during hard times. Your mom left quite a legacy, and you inherited A LOT of it.

Amy Marble said...

I'm glad I took a minute to check blogs while we're in CA! You do such a great job writing things down. I love how you wrote this! I sure miss your Mom - tonight as we were sitting her in our hotel room Jackson started writing down all of the little details of our trip so far in a little journal that he picked out as a souvenir. I commented a couple times to him and Freeman about how neat it is that he wants to keep a little trip journal. It really made me think of your Mom She was such a great journal keeper and an amazing example of so many other things! Love ya Emily! :)